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Rebel Health: A Commentary
Susannah Fox has written a new book called Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care . Her book overlaps...
Sue Robins
Jan 204 min read
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Take a Chance on Me
Ella and Isaac holding their baby brother Aaron This essay was originally published in 2005 in the Globe and Mail. I gave birth to my...
Sue Robins
Jan 114 min read
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Six Calls to Action for Patient Advocates
I’ve been an advocate in health care for a long time. I first realized the care was being eroded from health care when I was a student...
Sue Robins
Jan 33 min read
153
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I Don’t Do Disability: A Commentary
I’ve read all the memoirs written by moms who have children with Down syndrome (including obviously my own) and I can report that Adelle...
Sue Robins
Nov 18, 20244 min read
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The Dice are Loaded
People tell me that American politics are none of my business.  That’s not true.  They say that health care isn’t political.  That’s...
Sue Robins
Nov 6, 20243 min read
42
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Mama Bear Rears Her Head
My youngest son Aaron, who is 21 years old and has Down syndrome, had a long-awaited specialist appointment today. I’ll share my...
Sue Robins
Oct 31, 20243 min read
211
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Burnout: Patient-Advocate Style
Well is it dark enough? Can you see me?  - My Skin  by Natalie Merchant  Moral injury, distress and burn-out does not only happen to...
Sue Robins
Aug 21, 20244 min read
191
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Help, Don't Harm (The Cancer Edition)
Lately I've been hearing a lot about cancer from: People being investigated for cancer. People who have a brand new diagnosis of cancer....
Sue Robins
Aug 6, 20244 min read
47
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Lessons from Down Under, Part 2 Limestone Coast Local Health Network
Early in July, I took three planes and travelled a total of 24 hours to get to the Mount Gambier site at Limestone Coast Local Health...
Sue Robins
Jul 18, 20242 min read
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