My Crystal Ball
My son Aaron is 18 years old. He imbibes in a beer at the pub where it is legal and is scrupulous about saving money to buy the latest...
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Sue Robins
- Jun 11, 2021
- 4 min
RIP Patient Engagement
My son had his second COVID shot yesterday. I know that I am supposed to be thankful for every crumb thrown to my disabled child. I am...
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Sue Robins
- May 28, 2021
- 1 min
Our Collective Trauma
Four years ago today I was in the middle of cancer treatment. I never got over it. I never went back to normal. It was not a gift. In...
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Sue Robins
- May 24, 2021
- 3 min
Do You Care About Disabled People Or Not?
I was recently on a panel for the Canadian Association for Health Services Policy and Research. The topic was an important one:...
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Sue Robins
- May 19, 2021
- 2 min
We Are All Perfectly Fine
“Please look after yourself. It is ok to have a good life.” As a nursing school drop-out who eventually was granted an English degree in...
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Sue Robins
- May 3, 2021
- 3 min
Mary Morgan's Obituary
My friend Mary Morgan died on April 13, 2021. Before she died, she lived. She definitely lived - a rich and bold life. She was loved by...
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Sue Robins
- Apr 23, 2021
- 6 min
The Vaccine Roll-Out Gong Show
Canada’s slow and painful vaccine roll-out is not surprising to anyone who has been immersed in health care in this country as a patient,...
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Sue Robins
- Apr 17, 2021
- 4 min
Grace for the Storytellers
It is not secret that I believe in the power of storytelling in health care. I have been coaching patients, families and staff to craft...
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Sue Robins
- Apr 14, 2021
- 3 min
There Was Something About Mary
My dear friend Mary died yesterday. She had a MAiD (Medical Assistance in Dying) appointment and now she is gone. I met Mary at a...
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Sue Robins
- Apr 7, 2021
- 3 min
Big Hearted in a Pandemic
This pandemic has deeply affected those with Big Hearts. I’m struggling to write coherently in the midst of this crisis. I fear for my...
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Sue Robins
- Mar 30, 2021
- 1 min
Our Joy Today
My (former) little baby boy turns 18 years old today. I am not going to give a commentary about Down syndrome or the pandemic. We are...
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Sue Robins
- Mar 19, 2021
- 1 min
The Loss This Past Year
I have been attending various caregiver support groups to try to make sense of what’s happened this past year. Talking through my story...
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Sue Robins
- Mar 15, 2021
- 5 min
Birds Art Life
It has been four years since my cancer diagnosis. In 2019 I published Bird's Eye View, my book about my cancer patient experience (among...
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Sue Robins
- Mar 9, 2021
- 4 min
Thirteen Ways to Be a Patient Ally
A while back, I was at a follow-up cancer appointment talking to an oncology resident in the clinic room. We were chatting about the...
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Sue Robins
- Feb 8, 2021
- 8 min
A Day In The Pandemic Life, Month 11
Our days revolve around my husband’s work-at-home schedule and our new pandemic puppy’s need to pee or poop. Mike (the husband)...
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Sue Robins
- Jan 31, 2021
- 4 min
Everybody Grows Up
Last week, Aaron and I were asked to present a plenary talk to the Children's Healthcare Canada's Transitions to Adulthood Pop-Up event. ...
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Sue Robins
- Jan 20, 2021
- 3 min
Telling Your Truth
When my son Aaron was born 17 years ago with Down syndrome, I was dumped head-first into an ocean of advocacy. This was an extremely...
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Sue Robins
- Jan 13, 2021
- 5 min
Nobody Is OK
My jaw locked a year ago. This is called TMJ disorder. Last February, just before the pandemic, I went to the doctor and then got bumped...
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Sue Robins
- Jan 4, 2021
- 1 min
The Government is Not My Friend
The clarity came On a walk to the statue Of Terry Fox. Someone wrapped a scarf Around Terry’s neck Because it is cold. Because he was...
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Sue Robins
- Dec 15, 2020
- 3 min
Do Unto Others: A Story About Working Together
There is always a story behind a story. Here is how I found myself as the first non-health professional Guest Editor of a prestigious...
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